Communication makes us deeply human. There are already 47 ALS patients that have been benefited by our action to obtain a fundamental tool that improves their comfort of life.
Dario Ryba, president of Asociacion ELA Argentina visited the office of Asociacion de Esclerosis Lateral Amiotrofica de España (ADELA). Its President Adriana Guevara welcomed us and we talked about joint initiatives to develop within the framework of the International Alliance of ALS Associations.
We were very satisfied by a new meeting date and some tasks to deliver. Current volunteers: Soledad Diaz; Dr Federico Garavaglia; Claudia Bueno; Jonathan Soria Maria de las Mercedes Segui; Gabriela Huidobro Yofre. Representatives: Renzo Bogdan- Virginia Yofre.
61 people with ALS will improve their communication thanks to the supply of eye readers facilitated by Asociacion ELA Argentina through its work with health insurance providers, who are obliged by law to provide those devices to patients at no cost.